Emma Roddick MSP welcomed the team from Ehlers-Danlos Support UK (EDS UK) to the Scottish Parliament this week for an exhibition. The team from EDS UK spoke to MSPs from across political parties about the work they do to support those affected by Ehlers-Danlos Syndromes and give people a better understanding of the condition.   

Emma has worked closely with the organisation having been diagnosed with hypermobility at a young age, helping to raise awareness of the condition which is often very misunderstood.

EDS is a group of life-long genetic conditions which affect the connective tissues of the whole body, often severely, making it more fragile. Symptoms commonly include, but are not limited to, long-term pain, chronic fatigue, dizziness, palpitations, and digestive disorders.

Speaking on the exhibition, Emma said:

“It was so special to have welcomed the team at Ehlers-Danlos Support UK to the Scottish Parliament this week to speak to MSPs about this very misunderstood, chronic condition.

“It is so important people are aware of EDS and the effects it can have on folk as it is often brushed off by GPs. I was very lucky to get a hypermobility diagnosis at a young age, but many only find out much later in life that there is a real, tangible explanation for their pain and other difficulties.

“I am glad that MSPs from all parties had the chance to speak to some of the team about EDS this week to gain a better understanding of the condition that myself and so many other folk across Scotland suffer with on a daily basis.”

For more information, you can visit the Ehlers-Danlos UK Support website here.